Skip Navigation

Understanding Pheochromocytoma and Paraganglioma

Featured Member

Recent Pheochromocytoma and Paraganglioma Discussions

Bone Marrow Transplant
Hi, I'm Susan B
I was diagnosed with ET in 2017 after my having labs done with my PCP and he sent me to a hematologist. I then had a bone marrow biopsy which showed I have the JAK2 gene mutation. I was on Aspirin 81mg until March when I started HU at 65 yo. The dose has been adjusted several times since then. I feel tired all of the time, but seems to be the only side effect at this time. It is in some wa…   Read more…

More discussions

Pheochromocytoma and Paraganglioma Groups

Pheochromocytoma and Paraganglioma Community Resources

Created Jul 30, 2020 in Buck Cancer Foundation's resources · Like2
You will find over 2,500 reputable online resource links that you can search with regards to types of cancers, conventional and complementary treatments.
Created Mar 2, 2021 in julie grimm's resources · Like2
THE CANCER PLANNER will help you and your caregivers navigate your journey, organize the chaos and prepare for appointments and treatments. Just your specific details will be recorded and easily ac... more
Created Jul 19, 2021 in KEVIN S R.'s resources · Like1
Use for all labs

More Pheochromocytoma and Paraganglioma resources…

Tips & Suggestions

Exercise is good for you

Many research studies show that exercise can help people with cancer to feel better on many levels. Exercising for just 10 minutes a day can reduce your fatigue, stimulate your immune system, and nourish your body, mind and spirit!

Specific Facts for Your Diagnosis

Learn about treatment options and managing side effects from experts.

Get Support on Your Cancer Journey

Connect with thousands of members with your diagnosis and learn from their experiences.